This new field is as
yet unregulated. There is one graduate program in
“health advocacy” in the country, at
Sarah Lawrence College in Bronxville, NY, according
to a June 2008 Consumer Reports article on the subject.
But many kinds of healthcare professionals function
as advocates, including physicians.
David Silver M.D. straddles both the worlds of allopathic
and holistic medicine. He practiced emergency medicine
for 25 years in Colorado, beginning at St. Anthony’s
Hospital in Denver.
About the experience of being an ER doc, Dr. Silver
says, “Just seeing the onslaught of injuries
and illnesses that present to an emergency department
was a tremendous experience. That was where you
witnessed where society didn’t function. You
got to see all the people with a variety of addictions
bottoming out, overdosing on drugs, crashing their
cars. You got to see domestic violence, child abuse,
and sexual abuse. It was all there. That’s
what got me thinking about moving more toward a
preventive area in medicine.”
For eight years Dr. Silver also volunteered at the
People’s Clinic in Boulder, a reduced fee
or free clinic, where he found a more holistic way
to promote patients’ health. He left St. Anthony’s
to start, with a few colleagues, Wellspring Clinic,
the state’s first holistic medicine center,
which operated for two years in the 80s in Boulder
and incorporated a variety of CAM practitioners.
Dr. Silver’s other explorations beyond the
conventional medical world included studying and
practicing in several Yoga and meditation communities,
including the Community of Mindful Living with Tich
Nhat Hanh in Boulder and France, Ananda Marga Yoga
Society in New York, and Kripalu in Lennox, Massachusetts.
He studied body-centered psychotherapy for a year
through the Hakomi Training. And he studied a psychotherapy
system called Process Therapy with Anne Shaef for
two years.
Currently Dr. Silver, in addition to his Medical
Advocacy practice, is an associate clinical professor
in the Department of Preventive Medicine at the
University of Colorado Medical School, Denver. And
he teaches a class in sustainable community development
at CU Boulder.
We spoke to him recently at our office about how
you can get the most from your healing journey,
whether you use conventional medicine, holistic
complimentary systems, or both.
RD: What is your main goal with clients?
What degree of healing are you hoping they will
achieve?
DS: In my practice I work with
clients with challenging diagnoses, some of them
life-threatening. It provides me an opportunity
to explore with people what healing means at its
deepest level. I believe healing is always a possibility,
even in the face of a terminal illness. The body
may go. It will go, eventually. But the opportunity
to find a sense of resolve, growth, inspiration
and aliveness in the face of death, to find a deeper
sense of peace in the midst of turmoil, even loss
of function, increased disability and impairment,
is extraordinary.
RD: Could you give me an example of what
you do in medical advocacy?
DS: One client came to me with
a chronic hip condition that was going to require
a complicated and life-threatening surgery. He was
seeing a reputable orthopedic surgeon in Denver,
and he wanted to find out what his other options
were--where could he find the best treatment, who
had the most experience, who had the best outcomes.
And what about this procedure? What are the evidence-based
risks and benefits for it?
Many times, people feel compelled to do whatever
their doctor tells them, to accept it on face value,
and to trust them. Most of the time, this works
out just fine. But many times, it doesn’t,
because of our current situation in medical practice.
There’s increasing pressure on doctors. And
physicians just don’t have the time, the energy
or the resources to spend with their patients. They
can’t do the research that I would like to
think they would prefer to do.
RD: What kind of research? Do you mean finding
out more about the patient’s condition or
looking up the condition in the literature? Or both?
DS: Both. For example, what are
the best tests to determine a diagnosis? Even getting
something like an MRI could differ among different
centers: the different machinery they use, who’s
reading it and how it’s being interpreted.
Or what’s the best evidence-based literature
for certain tests? I consider myself a medical detective;
I try not to leave any stone unturned.
RD: After you meet with clients, do you
then refer them to another physician, or do you
treat them?
DS: I’m not treating people
as a physician; I’m counseling them as a medical
resource. I review a client’s medical records,
so I can see what has been done, while concurrently
reviewing the medical literature to see what the
best practices are, and to identify the leading
researchers and leading centers for my client’s
particular condition--not only in this country,
but also internationally.
For example, back to the client with the hip problem,
it turned out that his Denver orthopedist had only
done three of those procedures in his entire career.
That’s not to say he wasn’t competent
to perform this procedure; but if it were you, wouldn’t
you like to know which physicians have done dozens,
if not hundreds, of these procedures? My job is
to find those physicians. I set up consultative
interviews with them. I usually talk with at least
two or three, or sometimes more, of the leading
specialists; that’s something patients rarely
have the chance to do.
I was also able to review the risks and benefits
of the hip surgery with my client. We discussed,
for example, “What would life look like if
the worse case scenario happened? Could you be happy?
Could you accept your condition? And then what would
life look like if you didn’t do the procedure,
and continue to deteriorate? Could you find contentment
there?”
I think the bottom line question is, are we able
to find a level of peace and contentment in our
lives, no matter what our physical condition, environmental
condition, condition of our bodies or houses or
bank accounts? That option is always available.
Living in the moment, there really is no problem.
Knowing that and embracing that gives more freedom
to clients to choose things that they may otherwise
be more afraid of. Or it gives them a greater sense
of resolve when they make choices, and know that
the outcomes might not be what they would like them
to be. They may realize, when it comes down to it,
they’re in a no-lose situation. They can be
okay if they do nothing, and they can be okay if
they choose an intervention that might not work
out. I don’t think many physicians explore
with patients at this level.
RD: Do you direct people toward alternative
therapies when allopathy has run into a dead-end?
DS: I do, especially if that’s
a key interest of my client. For many chronic diseases,
there are no satisfactory or adequate treatments
in Western medicine. Short of surgery, people are
left to take whatever pain pills and anti-inflammatory
meds they can to get some relief. The need for medical
alternatives has driven research and acceptance
of new complementary medicine methods that have
proven to be effective. There are also growing databases
for complementary and alternative medicine that
contain solid evidence-based research as to their
efficacy. I would want to make sure that a particular
treatment is acceptable--not by virtue of testimonials,
which we frequently see for a lot of alternative
treatments, but by sound evidence-based knowledge.
RD: Like double-blind controlled studies?
DS: Exactly. It doesn’t matter
to me so much if the reasons why something worked
aren’t clearly established yet, but rather
that there’s a measurable indication of improvement.
Either it’s the subject’s white blood
cell count or it’s their decrease in fatigue.
RD: Do you encounter physicians who dismiss
alternative medicine out of hand?
DS: Yes. Doctors just coming out of the cocoon of
Western medical training have gone through almost
an initiation ceremony that has been dismissive
and condescending to non-allopathic practices.
RD: Even nutrition?
DS: I think that’s true to a great extent.
RD: It strikes me as odd: to study cell
biology, and ignore nutrition. It’s like studying
the suspension on the car, but skipping the engine.
DS: That’s true. And we’re also learning
about other effective means to improve people’s
health, like behavior change communication, and
incorporating that into medical and public health
education.
RD: Is that about how you talk to patients?
DS: Yes, and it’s how you
can work with patients to change their attitudes
and reinforce healthy behaviors. For example, how
many Americans don’t know that smoking is
linked with cancer, emphysema and chronic bronchitis?
But people still smoke! The knowledge is there,
but the behavior is not. The focus should be on
how do you promote healthy attitudes and behaviors
that will support people to make and maintain healthy
changes.
With behavior change communication, we would go
a step beyond giving people the knowledge of adequate
nutrition. We live in a very
savvy marketing world, and we’ve seen the
power of advertisers and marketing to changing behaviors.
The medical and public health world is waking up
to the options of incorporating those practices
to market good health practices. It’s being
done internationally with hand-washing campaigns,
a very simple behavior that can profoundly improve
the survival, and decrease the morbidity and mortality
from infectious diseases, which are rampant in developing
countries.
RD: What about people with serious illness,
who have exhausted their options in allopathic medicine
and are moving into the world of alternative medicine?
That world has so many diverse systems of healing:
ayurveda, homeopathy, acupuncture, Chinese herbs,
energy medicine, herbology--I could go on and on.
In allopathic medicine, you see a specialist and
get a second or third opinion, and you feel as if
you’ve covered all the bases. In alternative
medicine, each system is an entire perspective,
with interventions that sometimes take months to
reveal to you whether they’re working or not.
DS: That’s a great question.
It’s important to start with the understanding
that every practitioner you see is looking through
the lens of his or her own specialty. Most Western
docs will see through the lens of Western medicine.
A homeopath looks through the lens of homeopathy.
If we can take all those practices as a whole, we’d
have a much better opportunity to find where our
illness might lie and what the best treatment options
are.
My advice is to educate yourself. In the best of
all possible worlds your doctors or alternative
practitioners would also be your advocates. And
to some extent they are. But the reality is, the
task of teasing out specific variables, all the
evidence-based information, or finding leading practitioners
or centers, is not something that most doctors or
alternative practitioners are able to do in an office
visit. It really is in a patient’s best interests
to find their own personal medical advocate, whether
it be a friend, relative or a professional medical
advocate.
RD: Is the world of medical advocates and
the world of alternative medicine viable only for
those who have lots of money? Or do you think people
who aren’t rich can manage to utilize it?
DS: Sadly I would have to go beyond
your question into the state of medical care in
this country in general. Adequate medical care is
not available to a substantial percentage of the
population because of financial barriers. There’s
a sizeable group of welfare children who are receiving
little or no primary healthcare in this country.
That’s inexcusable.
And, sadly, insurance companies haven’t yet
caught on to the financial, emotional and medical
advantage for reimbursing advocates who can help
direct insured patients to a less expensive, more
favorable and more rapid outcome.
As far as cost, I’ll use myself as an example.
I work on a sliding scale. I have three initial
consultations with people to see if my services
are a good match for my client’s interests
and situation. I will then set up a menu for clients
for what services they would like in terms reviewing
their medical records, examining current literature,
or developing a care map, at the rate of $150/hour.
RD: In a typical case, if there is such
a thing, how many hours would that be?
DS: Typically within three hours
I can review a fairly substantial medical record,
condense it into a comprehensible form that I could
use to discuss the case with other professionals,
review current literature, and develop a list of
key questions to guide a patient’s pursuit
of care and treatment. So $450 is not inconsequential,
but when you think of the amount of money people
spend on their healthcare directly in terms of doctor
fees, indirectly in terms of time and energy, worrying,
researching, being sick, being unable to work at
the level they would like to, in terms of seeking
dozens of alternative healers that they really are
uncertain about, I think it’s a good investment.
And actually quite a bargain.
RD: Are there many people like you, or are
you a unique specialty?
DS: Medical advocates are now on
a new frontier that hasn’t been well-defined.
There’s a whole range of people who call themselves
advocates, from nutritionists, nurses, physical
therapists, alternative practitioners or PhD’s,
to medical specialists. Again: consumer, beware.
If you’re facing a serious illnesses or complex
diagnoses, I think it’s in your best interest
to seek someone with more of a formal medical background
to help navigate a complex sea of information.
RD: It’s a maze, of sorts. And it
sounds to me that you might shorten the journey
through the maze.
DS: That’s a good way to
put it. The medical advocacy strategy can significantly
reduce your time in the maze and the complexity
of the maze by more clearly identifying and orienting
your path at the start.
Once you are armed with a substantial amount of
information you can say, “I know what I’m
up against, and I’ll choose that aggressive
allopathic chemotherapy because it’s got the
best results. It’s a tough way to go. I’m
not looking forward to the side effects, but with
a 60 percent remission rate, that’s better
than anything I’m aware of, and I’m
willing to take the risks.” Or, you could
say, “You know, with a 20 percent remission
rate and my doctor saying that’s all they
can offer, I’m not willing to go that route.
I need to identify some other options. If the main
route is improving my immune status, how can I best
do that? What’s the best evidence out there
for increasing my white blood cell count? For increasing
my immune globulins? For increasing my hematocrit
and hemoglobin?”
You want concrete answers--not some loose promise
based on pseudo-scientific associations that something
can lead to something else. Your life’s at
stake; you want to know what’s out there;
who’s done the research and how do you find
it.
RD: The hyper drama approach of the media
isn’t especially helpful either. In women’s
magazines at the grocery check-out stand I am sure
you’ll see “miracle fat burner”
mentioned somewhere. There must be hundreds of miracle
fat burners discovered every year!
DS: We all want to believe in the
miracle. Paradoxically, the miracle that we think
we’re looking for is, in most cases, unreachable.
And the miracle that is deeply satisfying and healing
is already there, just waiting to be discovered.
The opportunity to experience healing and awakening
on a deep level is the miracle, and it’s always
there. It’s always ready to be uncovered and
seen for what it is. We tend to look in the wrong
places too often, and make things more complex and
unreachable, as if what’s here now isn’t
just perfect, isn’t just the exact circumstance
and opportunity in our lives to bring us into this
next level of healing.
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